Our Curse
Documentary
★ 5.6·2013·0h 27m
The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the On...
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Cast
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DIRECTOR
Tomasz Śliwiński
OVERVIEW
The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.